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“But Some of Us Are Brave”: The Courage and Vision 
of the SisterLove Women’s AIDS Project  

 

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by Layli Phillips

 
 

In 1977, the Combahee River Collective (CRC) penned the statement, “If Black women were free, it would mean that everyone else would have to be free since our freedom would necessitate the destruction of all the systems of oppression” (CRC, 1982, p. 278).  In that same treatise, the CRC wrote, “We realize that the only people who care enough about us to work consistently for our liberation are us.  Our politics evolve from a healthy love for ourselves, our sisters, and our community . . .” (p. 275).  Nearly a generation later, the global Black community -- and, in particular, Black women of the world -- faces one of the most serious and insidious threats to its survival in the form of HIV/AIDS.  HIV/AIDS is the Number Two killer of U.S. Black women between the ages of 25-44 (Sternberg, 1998), with 1 out of every 160 Black women infected (Rosen, 1999).  Current reports indicate that poor, young, Black women between the ages of 16-21 are contracting HIV/AIDS at rates which exceed all other racial, gender, and class subgroups in the U.S. population (Bynum, 1998; Kim, 1998).  In some African nations, such as Botswana, Namibia, Swaziland, and Zimbabwe, which exist at the “epicenter of the global pandemic” (Sternberg, 1998, p. 3A), between 1 in 5 and 1 in 3 people is infected with the HIV virus.  Women are a disproportionate number of those infected.

Here in the U.S., educational and medical developments which have helped stave the spread of HIV/AIDS have tended to benefit white males, particularly white gay men, and people of the higher socioeconomic strata, regardless of race (Cimons, 1998; Page, 1998; Rosen, 1999).  The cost of state-of-the-art drug therapies can run approximately $10,000 per year (Cimons, 1998), and educational outreach programs often bypass individuals, disproportionately the poor, who lack contact with schools and health care systems (Bynum, 1998; Lusane, 1998; Rosen, 1999; Sternberg, 1998).  In addition, prevention efforts often fail to take into account cultural nuances in sexual behavior and beliefs (Kim, 1998; Klonoff, Landrine, & Scott, 1995; Lusane, 1998; Page, 1998).  Thus, potential victims of HIV/AIDS who are not white, gay, male, middle- to upper-class, or American often remain under-served by widely used prevention programs; and those with the resources to provide new programs or alter or expand existing ones often remain in a quandary as to what to do.  This situation affects not only Black women, but also all other women of color, many males of color, and the poor of all races and ethnicities.

Efforts by the Black community to address the needs of people living with HIV/AIDS, as well as to educate those who might be at risk for contracting HIV/AIDS, have been fraught with obstacles.  Besides the obvious lack of financial resources which has plagued many groups desiring to work with people with HIV/AIDS, many Black communities have struggled with the stigma and controversy attached to “drug addicts, gays, the poor, ex-convicts and other groups that are seen as the major conduits of HIV into the Black community” (Lusane, 1998, p. 15A).  Through the nurturing of its own, the African American community has long functioned as a welcoming bosom to society’s disenfranchised and is no stranger to the support of individuals, often Black, who exist at society’s margins.  Yet, there is often a cautiousness about becoming associated with groups who may be perceived as “immoral,” because such associations may reinforce stereotypes about Blacks which persist in the larger American community.  Thus, the line between galvanizing the community’s resources and resolve behind people with HIV/AIDS and feeding more fuel to the fires of racism and discrimination has been a difficult one to walk.

Fortunately, “some of us are brave” (Hull, Bell Scott, & Smith, 1982).  At the heart of the courage to address the needs of women living with HIV/AIDS or at risk for contracting HIV/AIDS, especially women of color and poor women, stands the SisterLove Women’s AIDS Project of Atlanta, Georgia.  For a wealth of information about SisterLove, go to the web site: http://www.sistahspace.com/KindredSpirits/SisterLove/   Much of SisterLove’s “Herstory” that follows is taken from there and from conversations with Dázon Dixon, its Founder/President:  

“SisterLove, Inc., is a nonprofit women’s organization established to provide education, prevention, housing, and support services to women who are at risk for or already infected with HIV, or who have AIDS.  The Atlanta-based project’s primary goals are to instill education and empowerment in women of color at risk, to fill the existing gap in HIV/AIDS housing and support services for women and their families who are affected by HIV infection, and to reduce the spread of HIV through outreach, self-organizing, and networking. . . .  

“Founded in 1989, SisterLove can trace its beginning back eleven years [Editor’s note:  now thirteen] to a volunteer group of women interested in educating Atlanta communities of women about AIDS prevention and self-help safer sex techniques.  Thus, in 1986 the first Safer Sex Party for women in the Atlanta metropolitan area was developed at AID Atlanta, Inc., the state’s largest AIDS service organization.  In 1987, one of the women on the committee assumed responsibility for providing the parties in a collaborative effort with local women’s organizations.  The Women’s AIDS Prevention Project (WAPP) of the Feminist Women’s Health Center was then formed and funded for nearly two years, and then closed.  

“With the support of WAPP’s women of color Advisory Board, the Director of WAPP then became the Founder and Director of SisterLove women’s AIDS Project, which officially became SisterLove, Inc., some three years later in 1992.  Dázon Dixon, Founder/President, modified the previous program to capture the interest and respond to the needs of women at high risk, particularly women of color.  SisterLove is currently serving over 200 HIV+ women and their families per year through support groups, housing, and support service referrals and coordination of care with other related agencies.  In addition, SisterLove conducts prevention intervention presentations and workshops for over 3000 women, men, and youth each year.  

“To date, SisterLove is the first and only organization in metropolitan Atlanta dedicated specifically to the education, housing, and support of women at high risk for HIV infection and women living with HIV/AIDS.  In addition to addressing the lack of information and self-empowerment that puts women most at risk for HIV/AIDS, we celebrate the power and strength that women possess as a way for change.  We actively recruit HIV+ women and women living with AIDS to involve themselves in their own well-being and to receive the attention and support services that most agencies serving Persons Living with AIDS traditionally provide for men.  

“SisterLove has expanded over the years from humbly beginning as an educational and outreach program to providing full-scale social support services -- including housing, counseling, day activities, and case management.  In addition, we have provided program development assistance to dozens of agencies, and networking opportunities to our volunteers and clients at regional, national, and international levels.”

SisterLove sponsors several types of projects: the Healthy Love Party, a safer sex education workshop for women; the Careworks Volunteer Program, which channels volunteers into various departments of the organization’s activity; Project Azuka and Extended Sisters, geared towards reaching rural women in Savannah and Columbus, Georgia, respectively; Ourtime: Private Healing Retreat, a four-day weekend developed by and for HIV+ women; Loveworks Day Activities Program, an ongoing workshop series; and LoveHouse Supportive Living Program, a transitional housing environment for HIV+ women and their children.  SisterLove also sponsors facilitator training for all of their programs, and program development assistance to other organizations with allied goals.

Womanist Theory & Research salutes the women of SisterLove, Inc., and their unfailing work to support women living with HIV/AIDS, as well as their sisters who may be at risk for HIV/AIDS.  This staff includes several people whom we would like to recognize by name: Dázon Dixon, Founder/Director; Loretta Ross, Founding Board Member and Founder/Director of the Center for Human Rights Education; Lillie Steadman, Receptionist, formerly of the National Black Women’s Health Project (and going strong at age 83!); Janine Grantham, Education Program Coordinator and scholar of women’s economic human rights; Zina Age-Moore, Housing Program Manager and Founder of Aniz, a program for children whose parents are living with HIV/AIDS; Nailah Ruffin, Support Services Coordinator and graduate student in Clark Atlanta University’s Africana Women’s Studies Program; Nyrobi Moss, Resident Manager, actress, and undergraduate at Georgia State University; and Tamara Godfrey and Rennetta Mulkey, Spelman College Interns and psychology and sociology majors, respectively.  These women embody the womanist values of being “responsible, in charge, and serious” (Walker, 1983).  In the tradition of our foremothers, they keep many pots on the fire simultaneously!         

Further information about SisterLove can be obtained from:

SisterLove, Inc.  
P.O. Box 10558  
713 Cascade Avenue, SW  
Atlanta, GA 30310  
(404) 753-1500

References

Bynum, R.  (1998, Aug. 28).  Study finds infection rates higher for poor females age 16-21 than males.  Buffalo News, p. 16A.

Cimons, M.  (1998, Oct. 8).  AIDS falls off list of top 10 killers in U.S.  Los Angeles Times, p. 1A.  

Combahee River Collective (1977/1982).  The Combahee River Collective statement.  In B. Smith (Ed.), HOMEGIRLS: A Black feminist anthology (pp. 272-82).  New York: Kitchen Table: Women of Color Press.

Hull, G. T., Bell Scott, P., & Smith, B.  (Eds.)  (1982).  All the women are White, all the Blacks are men, but some of us are brave: Black women’s studies.  New York: Feminist Press.

Kim, L. L.  (1998, Aug. 28).  Health watch: Rx for risk: Poor, young, black, female: That group hit fast by AIDS.  Atlanta Constitution, p. 3C.

Klonoff, E. A., Landrine, H., & Scott, J. (1995).  Double jeopardy: Ethnicity and gender   psychology:  Theory, research, and practice (pp. 335-60). Washington, D.C.: American Psychological Association, 1995.

Lusane, C.  (1998, July 9).  The AIDS crisis among Blacks [Editorial].  Baltimore Sun,  p.15A.

Page, S.  (1998, Oct. 28).  Minority AIDS crisis declared.  USA Today, p. 1A.

Rosen, M. (1999, Feb. 27).  AIDS soars in Blacks: Infection, deaths at record pace nationwide.  New York Daily News, p. 2.

Sternberg, S.  (1998, Nov. 24).  World AIDS report says epidemic is growing.  USA Today, p. 3A.

Walker, A.  (1983).  In search of our mothers’ gardens: Womanist prose.  New York: Harcourt Brace.

 

Layli Phillips is Assistant Professor of Psychology and African American Studies at the University of Georgia and Co-Editor of WTR.

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